I've been really getting frustrated with the dystonia. it's been getting progressively worse after this 4 months or so of ease. tried botox again, doesn't seem to be doing anything. and i'm obsessing. going back on konopin. maybe i should try the artane?
thoughts of shooting it out of my brain.
jealousy of others.
frozen, hard to do anything about it. i have the name of some folks i really want to talk to but i don't know how to make the contact. that's the frustrating part of the medical system. getting heard.
sometimes i feel if i had lots of money i could hire someone to invent all the crazy ideas i have of how to help treat and cope with it.
is it worse/better to get it in your hand/foot?
the whole "able-bodied" thing.
list of ideas:
* gotta get back in touch with fella from prosthetics place with that nerve-zapper.
* a different shoe that prevented foot from going too far to trigger point.
things i should be doing:
* tai chi
* physical therapy at OHSU
* practicing my exercises from p.t.
* lose weight
* revisit accupuncture?
* find a good form for people with f.d. and become active on it